Sleep Apnea and CPAP machine

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Re: Sleep Apnea and CPAP machine

Postby v17l » Thu 03 Dec, 2015 9:33 pm

hi Darren,
just a quick update. Whilst not bushwalking, I had the occasion last week to drive from Townsville to the Alice with my daughter and her friend from overseas, whom I don't know. We were travelling cheap, bringing my daughter's gear back from uni, so we were sharing the same accommodation, ie triple room. My use of the transend at night was not even commented on. Mind you, I was tired from the driving, put my mask on and crashed. Function overcame any worries of using the cpap in public.
I am trying to get a leave pass for a trip in Thailand, in the new year and will be staying in some hostels in a dorm. Will report back on how this goes in terms of using in a more public sleeping arrangement.
cheers
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Re: Sleep Apnea and CPAP machine

Postby darrenb » Fri 04 Dec, 2015 7:42 am

Thanks for the update Steve. So far I've not acted on it, but haven't really had the chance to go walking either. I'm hoping to change that in the new year. Your info is encouraging. :)
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Re: Sleep Apnea and CPAP machine

Postby Moondog55 » Sat 02 Jan, 2016 10:50 pm

Well it seems as if I am going to need one of these damned things myself soon so how much are they?
2 days is pretty lousy battery life for a battery pack weighing a kilo+ but a power source is only a power source so there must be alternatives out there
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Re: Sleep Apnea and CPAP machine

Postby darrenb » Mon 04 Jan, 2016 9:16 am

Gidday Moondog. Don't quote me, but I think I was looking at around $1200 - $1300 for a 2-night battery and fixed pressure Trancend CPAP. They are available from CPAP Victoria, MCS, UFS Dispensaries and probably others. I agree that two nights is restrictive, though they do have a folding portable solar panel for a bit more dosh. So far I haven't found a viable alternative power source that is compatible and Trancend won't back it anyway. I've been on CPAP therapy for a year and a half and take my machine on hols (my Resmed unit can run on 12v with an appropriate adapter). So far I have just gone without when hiking but haven't gone for more than a few nights without CPAP. I am planning to do 10 day walk in Tassie in March, so that will be a test. I know that I'll get a crappy sleep each night, but hope that the exertion when walking will make up for the depleted oxygen levels. (You probably should seek medical advice, but I'm just taking the risk). Carrying even a portable CPAP just wouldn't be viable for me on this type of trip. I'll pitch my tent away from others if possible, or they'll think there has been a devil invasion. :)
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Re: Sleep Apnea and CPAP machine

Postby darrenb » Mon 04 Jan, 2016 9:21 am

Moondog55 wrote:battery pack weighing a kilo+
Pretty sure the P8 battery is around half a kilo.
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Re: Sleep Apnea and CPAP machine

Postby Moondog55 » Mon 04 Jan, 2016 2:31 pm

Interesting as I've just come back from the doctor who has referred me to a different specialist
The new young doctor has made a different diagnosis and reckons I do not have asthma but COPD [ Bugger but 30+ years in smokey kitchens surrounded by chain smokers will do that] and a CPAP may not make any difference in the long term. Maybe the Boss and I should sleep in separate rooms
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Re: Sleep Apnea and CPAP machine

Postby Moondog55 » Tue 10 Jan, 2017 1:54 pm

Back again
A year later and several sleeps wearing all the wires and a definite diagnosis of obstructive sleep apnea that is not connected to the COPD but both conditions are making each other worse it seems
both doctors want me to start a trial immediately
This is going to take a lot of fun out of my ski trips unless I can find a reasonable power supply
So how big a battery and solar panel am I going to need for this?
We do happen to have an older model travel CPAP machine here but no matter what it is a heavy bulky power sink that runs on 12V alternating
For those of you who have been using these machines for while how long can you be away from them before bad effects start to show?
Interesting side effect of the study was also that apparently I am not getting anywhere near enough REM sleep time, does using a machine help that?
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Re: Sleep Apnea and CPAP machine

Postby darrenb » Mon 16 Jan, 2017 9:42 am

Moondog55 wrote:Interesting side effect of the study was also that apparently I am not getting anywhere near enough REM sleep time, does using a machine help that?

Yep. I'm no expert, but I think that is normal for OSA sufferers. Once you get used to sleeping with the mask you'll wake feeling like you've had a decent night's sleep. I use a little Resmed P10 nasal mask, which suits me well (now). I hated it the first time I used it during the trial and tried various other types before going back to the P10. (Some were intolerable - persevere and try different types). I am much more comfortable with it now and dislike sleeping without because when I do I have a disrupted sleep and wake up feeling like I have a hangover. I don't think that this was made any worse by using CPAP for the past 2.5 years, but has just developed as I have aged. I simply feel better when I use it. Back in March I walked the South Coast track in Tassie, which including a few nights in a Backpacker's hotel resulted in about 10 days without CPAP. I felt tired during the trip, but not terribly. When I got home I slept almost 24 hours straight, which is very unusual for me and I was relieved to get back on my machine. My OSA is considered to be "mild" and experiences would vary depending on an individual's condition. Take your doctor's advice. I've since shelled out for a Transcend portable CPAP but am yet to take it on a trip. I'm doing a couple of hut-based walks in NZ in May and I'm intending to take it. When I add the mask, hose, bag, battery, etc it weighs about as much as my tent, so its a compromise, but one I consider to be worthwhile. I've arranged my trip so that I have a night in town between walks to re-charge. I can get 3 nights out of the P8 battery (6 hours/night on a low pressure). I don't consider the solar panel to be viable when conditions are likely to be overcast. Good luck!
Info on Transcend and solar here: http://mytranscend.com/products/power-a ... evice=2084
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Re: Sleep Apnea and CPAP machine

Postby Moondog55 » Mon 16 Jan, 2017 10:09 am

Mine is severe I am told.
I guess one of the worst side effects of not getting proper sleep is that I am healing more slowly than usual and my arthritis is getting worse it seems because of it.
I am looking at a car battery and small solar panels for my winter trip
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Re: Sleep Apnea and CPAP machine

Postby darrenb » Mon 16 Jan, 2017 10:24 am

I hope you aren't lugging that car battery too far Moondog! I bought a 12v adapter for my other machine so that I could use it for car-based camps. I also bought a 12v extension lead from Anaconda, which means I can leave the auxiliary battery in the car and set up a tent on the ground. I can see myself doing more vehicle-based trips in future too. I'd be interested to hear how you go.
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Re: Sleep Apnea and CPAP machine

Postby Moondog55 » Mon 16 Jan, 2017 3:52 pm

From Windy Corner car-park to my camp at Pretty Valley
Looking at small deep-cycle batteries I am in shock at how expensive they have become, both small amorphous panels in parallel only give 1.25Amp charging current. I may have to look at larger motorcycle batteries to get cost and mass down
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Re: Sleep Apnea and CPAP machine

Postby drakkar » Mon 16 Jan, 2017 8:13 pm

I get about 3 nights away before I start to notice a decline.

If I'm not working and have ample time to relax during the day, recovery times don't change.

My recovery times are VERY dependant on my testosterone levels, which can drop from sleep/breathing disorders. (There is some frightening statistics about test levels in men in general these days, and no where near enough GP's checking for this before giving out anti depressants ETC)
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Re: Sleep Apnea and CPAP machine

Postby darrenb » Tue 17 Jan, 2017 7:59 am

Information on CPAP batteries:
Before I decided to purchase the Transcend I found this mob in Dandenong. They supply batteries for standard cpap machines (much lighter than car batteries).
http://www.cpapbatteries.com.au/index.html
https://www.youtube.com/watch?v=I1_bXj8PMl8
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Re: Sleep Apnea and CPAP machine

Postby Moondog55 » Tue 17 Jan, 2017 8:29 am

Way more dollars than I can afford but I can see the sense in it for long travels away from power.
MC batteries are about $55-even if not deep cycle they should do for a fixed camp
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Re: Sleep Apnea and CPAP machine

Postby Moondog55 » Sat 21 Jan, 2017 12:15 pm

To those of you who have been using these machines for a while how long did it take for them to make a difference?
I've been trialling one now for 3 nites and I can't feel any difference at all. I must admit tho that it isn't as uncomfortble as I was fearing
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Re: Sleep Apnea and CPAP machine

Postby darrenb » Sat 21 Jan, 2017 12:48 pm

It took a while to feel any real benefit and I sometimes still wonder how much. It may have been weeks or months. Apparently my health is better for it - certainly less bruising on my right side (the side my wife sleeps on). I'm glad to hear that you are coping with your mask OK. You can usually rent different types to try before you buy.
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Re: Sleep Apnea and CPAP machine

Postby Moondog55 » Sat 21 Jan, 2017 1:16 pm

darrenb wrote: certainly less bruising on my right side (the side my wife sleeps on). .


Well this may turn out to be the major benefit then, apparently my snoring and twitching was keeping The Boss awake and a well rested Boss is not a Le-Grumpy Boss
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Re: Sleep Apnea and CPAP machine

Postby Moondog55 » Tue 24 Jan, 2017 3:55 pm

Well my doctor is happy enough
Day 5 of the trial, no problem using the machine or sleeping with a mask, BA training helps with that I think
My blood pressure is down a bit, from 166 over 88 to 133 over 77, as another benefit my craving for sugar is dissipating
Never had high BP before, I'm a tad overweight but only by a couple of kilos; so I guess it is related to the poor sleep
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